Table 1 Demographics and sickle variant for the derivation and validation datasets
Derivation set n  =  94 (670 visits)Range or percentageValidation set n  =  31 (214 visits)Range or percentage
Median age, years32.5(19–66)39(22–56)
Male43(45.7)13(41.9)
Female51(54.3)18(58.1)
SS54(57.4)18(58.1)
SC21(22.3)7(22.6)
S Thal10(10.6)2(6.5)
S Los Angeles0(0.0)1(3.2)
Trait0(0.0)1(3.2)
Unknown9(9.6)2(6.5)
Median no of visits6(1–67)8(1–60)
  • Data are medians and ranges or frequencies and percentages.

  • SC, sickle cell haemogoblin C disease; S Los Angeles, sickle Los Angeles disease; SS, homozygous sickle cell disease; S Thal, sickle cell beta thalassaemia disease; Trait, heterozygous sickle cell disease.

  • Data are medians and ranges or frequencies and percentages.

  • SC, sickle cell haemogoblin C disease; S Los Angeles, sickle Los Angeles disease; SS, homozygous sickle cell disease; S Thal, sickle cell beta thalassaemia disease; Trait, heterozygous sickle cell disease.