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PP30  The ambulance service and the child and young person’s advance care plan: listening to families and professionals
  1. Karen Shaw1,
  2. Jenna Spry1,
  3. Serena Cottrell2,3,
  4. Carole Cummins1,
  5. Nicki Fitzmaurice4,
  6. Sheila Greenfield1,
  7. Gemma Heath5,
  8. Joshua Miller6,
  9. Sue Neilson1,
  10. Magdalena Skrybant1,
  11. Paul Thompson1,
  12. Janette Vyse4
  1. 1University of Birmingham, UK
  2. 2Portsmouth Hospitals NHS Trust, UK
  3. 3University of Southampton, UK
  4. 4Birmingham Women’s and Children’s NHS Foundation Trust, UK
  5. 5University of Wolverhampton, UK
  6. 6West Midlands Ambulance Service NHS Foundation Trust, UK


Background The Child and Young Person’s Advance Care Plan (CYPACP) is a set of resources to help families and professionals agree a plan of care to be followed when a child/young person with a life-limiting condition develops potentially (i) reversible intercurrent illnesses or (ii) life-threatening complications of their condition. It covers clinical, psychosocial and spiritual issues, is designed for use in all environments that the child encounters, and can be used as a resuscitation and/or end-of-life plan. Little is known about the experiences of Ambulance Service staff who receive copies of these plans and may be called upon to follow the recommendations for treatment and resuscitation.

Methods As part of a regional qualitative research study, families who have a CYPACP and members of the ambulance service were invited to share their views and experiences of the CYPACP via an online survey, in focus groups or individual interviews. Underpinned by an interpretative framework, thematic and linguistic analyses are being used to understand the implementation in ‘real-world’ settings, and how the CYPACP shapes the experience, delivery and quality of care.

Results To date 20 families with a CYPACP and 25 members of the ambulance service have taken part. Analysis is on-going. Preliminary findings show that despite families with CYPACPs having multiple experiences of interactions with the ambulance service, it is rare for ambulance crews to attend a call where a child has a CYPACP in place. Findings also suggest that there are critical points within the process of conveying the information contained within the CYPACP document that could be improved.

Conclusion Following full analysis, it is anticipated that the ambulance services involvement with the CYPACP planning process will be better understood and that improvement strategies, including revision to existing documentation and identification of specific support needs can be made.

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