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Utilisation and accuracy of the emergency care data set in children with food allergy and anaphylaxis
  1. Konstantinos Kakleas1,
  2. AlShaik Farah2,
  3. Damian Roland2,3
  1. 1 Paediatric Allergy Department, Leicester Royal Infirmary, Leicester, UK
  2. 2 Paediatric Emergency Medicine Leicester Academic Group, Children’s Emergency Department, Leicester Royal Infirmary, Leicester, UK
  3. 3 SAPPHIRE Group, Health Sciences, University of Leicester, Leicester, UK
  1. Correspondence to Dr Konstantinos Kakleas, Paediatric Allergy, Leicester Royal Infirmary, Leicester LE1 5WW, UK; koskakl2{at}

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Dear Editor

In 2017, the NHS in England introduced the Emergency Care Data Set (ECDS) to standardise approaches to ED digital data collection in order to be able to meaningfully compare practice and improve quality of care. It contains 108 data fields including patient demographics, episode information (ie, arrival time and date) and clinical information. SNOMED CT1, an internationally validated structured clinical vocabulary for use in an electronic health record, was used to derive a limited number of subgrouped conditions as part of the diagnosis field. In the subgroup ‘allergy’, we noted the ECDS contained only eight possible diagnoses (Hayfever, Anaphylaxis, ACE Inhibitor Related Angioedema, Angio-oedema: hereditary C1 esterase inhibitor deficiency, Angio-oedema: acquired C1 esterase inhibitor deficiency, Scombroid toxin, Drug reaction and other allergic reaction). In a retrospective evaluation, for those children referred to an allergy clinic, we compared the ECDS discharge diagnosis coded on our electronic health record (Nervecentre V.5.0.1 2018 Nervecentre Software) by the treating clinician with their written ED record in the clinical notes and the final diagnosis from clinic. All …

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  • Handling editor Kirsty Challen

  • Contributors KK has participated in the collection of the data, analysis, writing of the paper. AF has participated in the collection of the data. DR has participated in the preparation, writing and corrections of the paper. KK and DR have prepared the response to the Editor’s comments.

  • Funding The authors have not declared a specific grant for this research from any funding agency in the public, commercial or not-for-profit sectors.

  • Competing interests None declared.

  • Patient and public involvement Patients and/or the public were not involved in the design, or conduct, or reporting, or dissemination plans of this research.

  • Provenance and peer review Not commissioned; externally peer reviewed.

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